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The Good Thoughts and Prayers Needed Thread 2

Re: The Good Thoughts and Prayers Needed Thread 2

Thanks and thanks to all for the kind words. She had a stent put in because some bile ducts were blocked by the mass in her pancreas. They want to wait and see if the swelling will go down before deciding on surgery or if she will need chemo to shrink the mass before surgery. Obviously we are hoping to skip that and go right to surgery. New imaging will be done next Monday and then they will determine next steps from there.

Dx, I’m praying for a quick diagnosis and fast healing for you as well.

Thank you. I’m definitely still thinking about you and your wife. Hopefully things go well.
 
Re: The Good Thoughts and Prayers Needed Thread 2

Lots of stuff going on with our Board family :( Thinking about you all.
 
Re: The Good Thoughts and Prayers Needed Thread 2

So good news today.

My liver enzymes have started to come back to normal, but a few are still elevated. All of the blood tests have come back negative with the exception of Epstein-Barr which hasn't come back yet. So things are trending well, but not entirely out of the woods yet.

Follow-up with the specialist tomorrow. Crossing my fingers.
 
Re: The Good Thoughts and Prayers Needed Thread 2

The liver is such a plastic organ. If things are going down that is awesome!
 
Re: The Good Thoughts and Prayers Needed Thread 2

I remember reading years ago you basically grow a new liver every few years. It regenerates itself so fast.
 
Re: The Good Thoughts and Prayers Needed Thread 2

Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.
 
Re: The Good Thoughts and Prayers Needed Thread 2

Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

WTeff?! No words to answer that except holy cra p!
 
Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

Just saw this (been staying away from cafe). You have what I had 38 years ago. I think it was caused by stress.

Same symptoms, same everything. Cure then was no alcohol for 6 mos., rest, and be prepared for days when you hit a wall.

You'll get better.
 
Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

Send him a bill...

Nice to hear it's not serious.
 
Re: The Good Thoughts and Prayers Needed Thread 2

Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

Always Be Billing :rolleyes:

Glad to hear you'll be OK.
 
Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

$1,500?!?!?!

You don't have insurance?? :)

Good to hear it's all figured out and a solution is set.
 
Re: The Good Thoughts and Prayers Needed Thread 2

Well, we finally got an answer today. What my girlfriend and I had originally insisted it might be. Friggin mono. The one test my first doctor didn’t want to order because it was extremely rare for someone my age to have not been exposed. It was the last test run. It would have saved me $1,500+ if the first doctor had ordered it like I had asked.

But because of my age and the somewhat uncommon presentation of jaundice and asymmetric lymph involvement, he didn’t want to order the $40-70 test.

I’m thrilled I got an answer today, but I’m also seething at the cost, the mental anguish, and the time spent on getting there. This is what’s wrong with medicine. It really is.

I suppose the silver lining is now you know and can put a treatment plan into place. But I hear you about seething about the cost. What a trainwreck. But I am glad you are OK!

And now I need to ask you all again for you good thoughts and positive vibes for my dad. He went back to the ER early this morning. Having issues breathing and his oxygen level in his blood, even with constant oxygen. I am heading up to the hospital after taking care of a few things here.
 
Re: The Good Thoughts and Prayers Needed Thread 2

I suppose the silver lining is now you know and can put a treatment plan into place. But I hear you about seething about the cost. What a trainwreck. But I am glad you are OK!

And now I need to ask you all again for you good thoughts and positive vibes for my dad. He went back to the ER early this morning. Having issues breathing and his oxygen level in his blood, even with constant oxygen. I am heading up to the hospital after taking care of a few things here.

With you in spirit!
 
Re: The Good Thoughts and Prayers Needed Thread 2

One year ago today, I started hormones and a testosterone blocker. My life has drastically improved. I have the best friends, the right support, my mood has drastically improved. Yes, I have lost muscle mass (d-mn pickle jars), my running times have slowed down, but I'm having fun.

I dealt with water weight... real thing, regardless of how clean I think my diet is.

Supreme Cranky B-tch... cis ladies understand I can go from 0 to her in less than three seconds.

Wanting to eat everything.

And all the bodily changes!
 
Re: The Good Thoughts and Prayers Needed Thread 2

Today, I don't have a long letter to myself like I hoped I would, but...

It is my one year anniversary on Estradiol and Spironolactone. Made the adjustments; Supreme Cranky B-tch wanted to come out and play, and I wanted to eat everything. I've had my moods. I've had my ups and downs. I've had my coffee for the morning and wine for the evening, but it comes with a sense of peace now.

I've watched my breasts start to grow. My face redevelop. I saw some fat redistribute. I saw myself lose some muscle mass, but committed to not losing any more. Gotta open that pickle jar, right? I watched my running times slow down, even without a bad foot. I ran in skirts, instead of shorts. But I stand poised to become a trailblazer at local events.

I watched confidence spring up. I've seen myself be welcomed into several families. Older cis women taking me on as their daughter/niece. I saw myself get welcomed into a thriving community of faith, not just at Grace, but in the world at large.

I'm looking forward to the future. There will be Mama hugs. There will be a book. There will be an MSW in there, too. So much about me that it's impossible to be defined by just the T in LGBT.

Thanks for being there... you're a critical piece in my puzzle, just as I learned I'm a vital piece in your puzzle.
 
Re: The Good Thoughts and Prayers Needed Thread 2

So- it has been a not good day. Asking for prayers on 2 fronts.

-Gal I know from kidhood- my age- had 2 strokes this past week. THey found a heart valve problem. I thought phew! that is fixable. Call this AM. They sent her home to die. Has some sort of cancer. I don't know the rest of the story but it isn't good. Her parents are devastated. She has kids. It sucks.

- kiddo my Uncle is close to (he's sort of adopted into their family) my son's age, was born about the same time, has the same name, is missing. They have a Silver alert out. Have dragged the lake, grid searched and no sign of him. He's had some struggles in the past but had been doing well.

Any and all good vibes, prayers, positive thoughts for these families would be welcome. :(
 
Re: The Good Thoughts and Prayers Needed Thread 2

Yikes les, on both accounts. Good thoughts headed your way.
 
Re: The Good Thoughts and Prayers Needed Thread 2

THanks. Haven't heard anything about either. Not going to be a good ending I don't think :(
 
Re: The Good Thoughts and Prayers Needed Thread 2

Allow me to tell you how your thoughts and prayers for me have worked out:

Grad school is going well; pulling all As so far (pending final assignments), and instructors say I'm wonderful to have in class. To think I was nervous.

Almost to 15 months on hormones. I got what I wanted out of it: I'm genuinely happy, if not joyful. I rate my mood on a scale of 1-10, 1 being "everything is horrible" and 10 being "EVERYTHING IS AWESOME!" Right now, even with a harsh and nasty political climate for LGBT, I'd rate it an 8.5-9 out of 10. Social support helps so much.

Speaking of hormones, I was moved from pills to shots. Far more effective method of delivery.

Endurance racing is now fun again, understanding that PRs and time never really mattered to begin with. What matters is that I'm out there having fun.

I'm not even bothered all that much by severe mid-foot arthritis. There will come a day when I can't do it any more... but it wasn't today at the Bear Lake Sprint Duathlon. Won't be tomorrow, either.

For the first time in my life, I look forward to each day and I'm looking forward to the future. It feels good to be going somewhere for a change!
 
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