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The Medical Thread: We're experts on everything else; why not?

Dr. Mrs. just made coffee. With the coffee cup sitting happily right next to the coffee maker. Something like this happens about once a month. Only a matter of time until it's something not funny. And there's nothing we can do about it.

F-ck MS.
 
Kepler said:
Dr. Mrs. just made coffee. With the coffee cup sitting happily right next to the coffee maker. Something like this happens about once a month. Only a matter of time until it's something not funny. And there's nothing we can do about it.

F-ck MS.
Click to expand...

Sorry, Kep. F-ck MS indeed.
 
Kepler said:
Dr. Mrs. just made coffee. With the coffee cup sitting happily right next to the coffee maker. Something like this happens about once a month. Only a matter of time until it's something not funny. And there's nothing we can do about it.

F-ck MS.
Click to expand...

I don't know what this is about either (and acknowledge it's none of my business), but F MS as well.
 
Swansong said:
I don't know what this is about either (and acknowledge it's none of my business), but F MS as well.
Click to expand...

I made it people's business by venting about it because it sucks so bad and I need company to at least share it.

In extreme case MS turns your short term memory to porridge. You don't know what you were doing 10 seconds ago and don't know you don't know. Dr. Mrs. has this. It is horrible to watch a young PhD go through short bursts in which she essentially has Alzheimers. And then realize it a few minutes later. It's like she's being buried alive, cognitively.

Her meds are supposed to arrest it (it's lesions on the brain so they're irreparable but hopefully it won't get worse). We are incredibly lucky -- her daily pills, which didn't exist ten years ago, cost $300 each on the free market but through a combination of circumstances we get them for a tenth of that. And her doctor is (by pure chance) one of the leading researchers on her specific type of MS (and they bonded so she gets incredibly good care to the point of her doctor threatening hospitals and insurance companies). We are lucky. But it f-cking sucks. Hasa diga eebowai.
 
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Kepler said:
Dr. Mrs. just made coffee. With the coffee cup sitting happily right next to the coffee maker. Something like this happens about once a month. Only a matter of time until it's something not funny. And there's nothing we can do about it.

F-ck MS.
Click to expand...

I’ve been learning about MS because I’ve already been checked for it, but of course it’s not completely ruled out. My issues stemming from covid caused an immediate brain mri to check for MS because doc said normally with MS there’s some activity that becomes apparent on the results. It doesn’t show anything yet, but it’s not crazy for a virus to trigger an auto immune disease
 
Deutsche Gopher Fan said:
I’ve been learning about MS because I’ve already been checked for it, but of course it’s not completely ruled out. My issues stemming from covid caused an immediate brain mri to check for MS because doc said normally with MS there’s some activity that becomes apparent on the results. It doesn’t show anything yet, but it’s not crazy for a virus to trigger an auto immune disease
Click to expand...

Dr. Mrs.' neurologist pointed out the similarity: "one less thing to worry about, your brain's already damaged."

My understanding (which is superficial) is that COVID won't trigger MS but COVID can cause short term memory loss similar to some flavors of MS. I don't know whether the COVID version is irreparable the way the MS version is. My impression (which is even more superficial) is the COVID version is neuro-chemical and thus normal activity can return, as opposed to the MS version which is actually destroying physical brain tissue.
 
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Kepler said:
I made it people's business by venting about it because it sucks so bad and I need company to at least share it.

In extreme case MS turns your short term memory to porridge. You don't know what you were doing 10 seconds ago and don't know you don't know. Dr. Mrs. has this. It is horrible to watch a young PhD go through short bursts in which she essentially has Alzheimers. And then realize it a few minutes later. It's like she's being buried alive, cognitively.

Her meds are supposed to arrest it (it's lesions on the brain so they're irreparable but hopefully it won't get worse). We are incredibly lucky -- her daily pills, which didn't exist ten years ago, cost $300 each on the free market but through a combination of circumstances we get them for a tenth of that. And her doctor is (by pure chance) one of the leading researchers on her specific type of MS (and they bonded so she gets incredibly good care to the point of her doctor threatening hospitals and insurance companies). We are lucky. But it f-cking sucks. Hasa diga eebowai.
Click to expand...

I have a friend that has M.S. It got to the point where she couldn't work (she also had a PhD), and and was barely active. She's lucky though -- she had an amazing recovery that I don't think many people experience. At one point, she got sick of being disabled to the point of being unable to work, or get out an enjoy herself. She saw the runners for our local marathon and decided "I'm going to do that". She trained her ass off, and while she never became a "fast" runner (she's still a lot faster than me), she became a long distance runner. She's completed a bunch of marathons and then turned to ultramarathons (100 mile). She doesn't finish every ultra she enters, and she isn't the fastest, but she has completed a number 100 milers. She's doing great, working as a research scientist. It really blows my mind.
 
BassAle said:
I have a friend that has M.S. It got to the point where she couldn't work (she also had a PhD), and and was barely active. She's lucky though -- she had an amazing recovery that I don't think many people experience. At one point, she got sick of being disabled to the point of being unable to work, or get out an enjoy herself. She saw the runners for our local marathon and decided "I'm going to do that". She trained her *** off, and while she never became a "fast" runner (she's still a lot faster than me), she became a long distance runner. She's completed a bunch of marathons and then turned to ultramarathons (100 mile). She doesn't finish every ultra she enters, and she isn't the fastest, but she has completed a number 100 milers. She's doing great, working as a research scientist. It really blows my mind.
Click to expand...

When she was unable to work was it physical or cognitive? According to her neurologist, Dr. Mrs. is not at risk of winding up in a wheelchair; just of being a drooling vegetable.
 
Kepler said:
When she was unable to work was it physical or cognitive? According to her neurologist, Dr. Mrs. is not at risk of winding up in a wheelchair; just of being a drooling vegetable.
Click to expand...

I think it was a mix of both, but probably more physical than cognitive.
 
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